The Compassionate Friends

There is a group of people who get together on the first Tuesday evening of each month to share their stories and support each other. These groups meet all over the world on a regular basis. They are The Compassionate Friends and they are all people who have lost a child.

The format is much the same each meeting; each person says their name and what happened to their child. The voices move in a circle. Hi, my name is blah and my son died in an aeroplane accident aged 31; my daughter died of cancer at 22; my daughter was hit by a car at a pedestrian crossing at 13; my son died from a prescription overdose at 19; my son committed suicide at 22; my daughter fell off her horse at 19; my son died whilst travelling overseas at 19; my daughter died in a car accident at 15; and my daughter drowned in a tsunami at 6 years of age.

Sitting there listening to the stories is heartbreaking because it does not matter if the child died two years ago or 20, the parent always has tears in his or her eyes when they state what happened to their child. It doesn’t matter at what age the child died either because they are all someone’s child.

Then we go around the circle again, listening as each tells what has been happening in their lives and how they are feeling about the loss of their child. Each person is different and each person has a different story. We all listen because that is why we are there, to listen to each other when other people will not or cannot listen to our stories.

It is a horrible experience to know that there are so many people with reasons to be so sad. But the experience of sharing pain and hurt is a kind and generous experience.

We are The Compassionate Friends.

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Image of a Man

On this day of solitude (Good Friday) I want to share this enduring image of a man which I hold in my mind. This is a man who I only know because Clea died and because she died in a place where he worked at the time. I had met him briefly before the airport and I have since seen him a number of times but it is this image below that I hold in my head. It is the image of a man who has to undertake a sad and solemn duty to ensure his countrywomen are treated with respect, even in death.

Thank you.

She wanders along the verandah of the fale at the edge of the airport. The warm, tropical breeze reaches her and touches her but she is unaware. She is watching a man walk toward the airport gates. He opens them. He waits patiently as three hearses drive through. He moves to the front of them and slowly, respectfully and patiently he walks ahead of the hearses past the lone woman on the verandah to the edge of the tarmac. He is the silent sentinel guarding the hearses parked on the grassy verge at the end of the tarmac close to the ocean.

There is an aeroplane preparing for its flight across the ocean. Again, he walks ahead of the hearses to the cargo hold of the aeroplane. He watches and waits as the coffins of his countrywomen are loaded into the underbelly of the aeroplane.

She watches too because one of those coffins holds her beloved daughter. She does not know which one. Later she boards the plane as well with the knowledge that her daughter lies below her in the cold depths of the plane. They are going home.

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Keeping the Dead Alive

Clea has been dead for 182 weeks (that is three and half years) and I am finding life very difficult. I spend a great deal of my time trying desperately to keep Clea alive. I do many, many small things each day to ensure her survival in the minds of others.

I talk about her as though she is not far away. I talk to her as though she can hear me. I write to her in my diary as though she will one day be able to read my letters. I say goodnight to her each night as though she is there in her bed waiting for me to kiss her goodnight. Her brothers wish her goodnight.

I do not look at Clea’s photos over and over again. Photos do not have the life of Clea. They do not hold her essence or her personality. They do, however, make me cry.

Sometimes, I can will myself to feel her against my skin as we cuddle. I can almost breathe her into my body. Sometimes, I can hear her voice or recall the way she sat on the lounge chair with her long languid legs draped over the armrest or strutted down the hallway pretending to be a model on the catwalk.

I have no belief in a god but like those who do believe in a god, I too have an invisible friend. Clea has become my invisible friend; one who I want walking beside me every day.

It may sound hypocritical to say that I talk to Clea. I stand above her grave and talk to her; I drive in the car and talk to her; I walk around the garden and talk to her; I sit in her bedroom and talk to her. But deep down I know that I am talking for my own benefit and although I would dearly love to believe that Clea is listening, I do not believe so.

We try to keep people alive so that we, those who are alive, can cope. It is a coping mechanism or strategy (as I am continually told). My strategies do not always work very well and facing up to the reality of her death can knock me back to those foggy months of after she died. I find that I cannot get off the beach or out of the morgue.

I have finally succumbed to having to decide whether to take anti-depressants or not. I do not want to take anti-depressants so I am searching for ways to calm my mind and find peace within. I have a prescription but I have not had it filled by a chemist yet. It sits in my handbag. I am not sure what I am waiting for, complete collapse or eventual peace. I can’t meditate because I can’t still my mind. I can’t even make a decision about taking anti-depressants!

I cried at work last week something which I have never done – not uncontrollably anyway. I know the woman did not understand my trauma. How can she understand? She knows my daughter died in a tsunami but she does not know that my daughter was holding my hand or that I was on the verge of death. Those are things that I would find hard to explain in person. She does not understand the relationship between the stress of work and the traumatic stress of my life. The connection is lost on her; which reminds me of a quote from TS Eliot:

    ‘Do
You know nothing? Do you
       remember
‘Nothing?’
                       I remember …

TS Eliot – The Waste Land, II A Game of Chess

As I have told others, this new job is doing horrible things to my brain. And as friends in trauma told me last week, my brain is not my friend; not anymore.

I visit Clea’s grave each week and it makes no difference but I have to look after Clea in some way. I have to keep her alive. That is my only coping strategy.

One day, maybe, I will make it off the beach or out of the morgue but in the meantime, I have to force myself to ask others for help (this is something I am definitely not good at doing) so if I ask you (and believe me, it will take all my energy to ask) please listen and try to help me.

Thank you.

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Confidence Game

No one is ever prepared for the death of a child but something that hardly anyone mentions is how much of yourself you lose with your child.

I have said before that you lose your future or at least the future you thought you and your child were going to have but you also lose the life you had alongside their life. And you lose part of yourself along the way.

One part of yourself that you lose is your self-confidence. We are proud and confident as parents showing off our beautiful and intelligent children. But when one dies, all that confidence is lost. You start to worry about your judgment; after all, wasn’t it bad judgment that caused the death of your child? You start to worry about your ability to think critically and to think strategically; after all, you are only able to live in the here and now. The future is unthinkable.

This often makes work difficult as you are supposed to apply judgment and critical thinking to policy issues but mostly you really don’t care about those issues. Once I had plan A and if that didn’t work I had plan B, C etc. I have no plan now. There is no back-up plan for the loss of my child. There is no strategy to deal with the future. Instead, I have coping mechanisms to get me through each day.

You start to take much less interest in the happenings around the world. Many events and issues do not seem to be as important as they once were. Most events and issues do not affect you directly. People’s lives become uninteresting and you wonder why they spend so much time fretting over things that will not make them happy or fulfil their lives.

It is as though through your child’s death and your own suffering, you have learned something about life that others do not know. You have some new sort of new knowledge. Having that sort of knowledge places you apart from the everyday world that most people inhabit.

I do not feel part of this world. I sit on the sidelines observing a process that I do not feel involves me. I have not felt like I was part of a team at work for close to 177 weeks; since Clea died. Now, that I have started a new job (my second new job in 12 months – probably not the best idea), I do not have the confidence to apply myself. Sometimes, I simply do not want to apply myself and sometimes, I do not understand the urgency or importance of work. Even before Clea died, I was never one to ‘dedicate’ myself to my work and now it is even worse.

It seems that my entire CV belongs to someone else. That is not me; not anymore. No where on my CV does it mention that I survived a tsunami or that my daughter died in that tsunami or that I still probably suffer from post-traumatic stress disorder. Most people think that this is all my business and do not feel obliged to pass the information on to prospective employers. I see a psychologist privately; not through work. My work knows nothing unless I tell them. I have somehow hoodwinked people into employing me and now I cannot live up to their expectations. I am a fraud in someway or I am someone else. Wouldn’t you, as a manager, feel somehow defrauded?

My brain doesn’t work the way it once did. I am unable to grasp concepts as quickly as I once did. I do not have the desire to achieve, or the will, and I do not have the depth of feeling required to be concerned about issues. My memory is not what it was either. My heart is heavy and strained with loss and there is little space left for ‘work-related issues’. All these things could be put down to getting older but they are also exacerbated by grief.

I am unsure how much to tell my new work colleagues (all are relatively young and none have children). How do I explain that I box my life into separate compartments so that I can function? How do I explain that any element of stress may bring those compartments crashing together, the outcome of which may not be nice? Can I be bothered explaining to them the depths of emotion and pain and trauma that you feel when you have lost your child? How can I explain this to people who think that their work is their only priority and appear to have little responsibility outside the work environment? To quote George Johnston in his book Clean Straw for Nothing: “You are an alien everywhere, because alienation is something you carry inside yourself, and all you can do is fashion little enclaves and try to live inside them.”

I am concerned that they may think that I am making excuses or that I ‘simply can’t cope’. They would be surprised how well I actually do cope. I often look at people and wonder if they could cope with my life. One colleague told me how ‘lucky’ (what a word?) I was to work four days a week. I thought, yeah real lucky, I get to spend my Fridays with my dead daughter and my insane father, trying to keep myself sane. Wonderful!

As I told my new manager, I am not interested in promotion mainly because the higher up the ladder you go the more you have to deal with other people’s problems – I have enough problems of my own.

This is a life that I have to deal with in my own way and although I am not confident that I can do that, I am trying to do just that because I know nothing. I remember nothing.

                  ‘Do
You know nothing? Do you
remember?
‘Nothing?’
I remember …

T S Eliot – II A Game of Chess, The Waste Land

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175 Weeks

Yesterday, it was 175 weeks since my daughter died in Samoa. What does that mean, you may ask?

Well, 175 weeks is almost three and a half years. It is 175 weeks of counting time; of counting the weeks since her death; of trying to work out how many more weeks there will be in this life.

175 weeks means that Clea did not begin Year 5 yesterday with all her friends. It means she has not grown tall and slim like her friends have done. It means she has not grown adult teeth which has changed the shape of her mouth slightly. It means she has not asked me for an iPod touch or any other such technology.

175 weeks means that her brothers have continued their lives without her but have continued to wish her good night and to talk about her as though their big sister is still with them. It means that yesterday they began Year 3 without her support and hand-me-downs.

175 weeks means that her father and I have had to continue our lives in pain and torment unable to deal with the everyday lives of others. It is 175 weeks of wishing for a different  29 September 2009.

It is 175 weeks without her laughter, happiness and love.

175 weeks is a very long time. It is also a reminder of the very, very long number of weeks that are yet to come.

Miss you Chickie.

 

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Happy 10th Birthday Clea

IMG_0152Sometimes, there are no words.

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Merry Christmas Chickie

This is our fourth Christmas without Clea. We are in Hoi An, Vietnam, trying to avoid any Christmas celebrations. Clea’s brothers no longer believe in Santa Claus so I do not have to pretend to deliver any presents. We have not had a Christmas tree since Clea died. The boys have stopped asking. Occasionally, one of them reminds me that I promised Clea a fake Christmas tree the year she died.

I think her cousins are all spending Christmas in their own homes. Clea’s grandmother will be alone with one of my sisters because my father is in a high-care psychiatric hospital. That’s not a very merry Christmas at all.

We thought that Vietnam would be an easy country to visit to escape the Christmas festivities but no, all the hotels and tourist areas are full of Christmas trees, fake snow and Christmas carols. It is more the worship of Santa and presents than the Christian idea of Christmas. I was enjoying Vietnam until the hypocrisy of Christmas arrived. I may be many things but I am not a hypocrite.

As a non-believer and a non-shopper, I have difficulty finding anything of interest in Christmas. I intensely dislike the commercialism and marketing associated with Christmas present shopping. People seem to buy for the sake of buying even though they cannot afford all those presents. There is a lot of pressure to be part of the ‘festive season’. I don’t have any religious beliefs associated with Christmas so I see very little in the so called ‘celebrations’ surrounding Christmas. I find what the Vietnamese are doing to be so fake that I can’t even fake a bit of enthusiasm myself.

Clea loved Christmas. She loved the excitement of getting presents. I do not know what an almost 10 year old girl would want for Christmas. I have seen many little presents for Clea in Vietnam. In the middle of the night, Jordi said that we should buy Clea a present and leave it at her grave. I’m not sure why he thought of that in the middle of the night.

I sat on a bus yesterday thinking about Clea and Christmas. Tears dripped down my cheeks as I realised that this was our fourth Christmas without her and that she only had six Christmases in her life. Six is not many. Not enough for your dreams to come true.

I can’t find any chocolate coins in Vietnam for my sons but I did leave some for Clea when I went to the cemetery before leaving home. I have my lotus flower candle which we will light tonight and may be float on the river in Hoi An; depends on the weather.

As I have said many times, I have only one wish, one dream, and that is for my daughter to be with us. That dream will never come true so I do not wish for any presents at Christmas. I have no need of anything. What I want, I cannot have.

Merry Christmas Chickie. I love you. I miss you.

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